“They really aren’t getting better,” says the founder of the COVID-19 Long-Healers Support Group.


President Trump knew in February that coronovirus was fatal and worse than the flu, even though publicly he downplayed the severity of the virus, according to a new book by journalist Bob Woodward.

A suburban mom has been trying to tell people how serious this epidemic has been since March. Diana Barent is a COVID-19 long-time ruler, a man who suffers from debilitating medical issues even after his trial, stating that he no longer performs coronavirus.

Barent still struggles with symptoms about 7 months after experiencing his most serious illnesses with COVID-19. She says she has seen specialist after specialist for complications with her eye light, gastrointestinal tract and recurring headaches.

She recently received shocking news from an eye doctor who reported that she has borderline glaucoma, a condition that can lead to blindness.

“I actually just went to the eye doctor in January and then the pressure level was completely normal – and here we are,” she says.

Berent realized that there were other tall-skinned people like him – a third who were coronovirus but not ill enough to be hospitalized are the long-term effects, Centers for Disease Control and Prevention report. So she formed the online group Survivor Corps, where members document their symptoms, donate plasma, raise money for treatment and research, and provide support.

After hearing the stories of 100,000 members in Survivor Corps, she considers herself lucky. Partnering with Indiana University, the group conducted a survey of symptoms and found that members reported 98 different diseases from COVID-19 – eight times more symptoms than the CDC listed.

Because coronovirus is a vascular disease, she says, members of the Survivor Corps are experiencing “damage to almost every organ system”.

Respiratory problems are the most common long-term symptom of long-term people in the group, she says, and “very related degrees of neurological issues”, such as frequent, “soul-crushing headaches” that make people perform daily activities Unable to leave. .

Other post-COVID-19 diseases include diabetes, lupus, inflammation of the joints, skin problems, and tachycardia, a heart condition that can lead to a stroke or heart attack, she says.

She says the US is doing “enough work” of infections, hospitalizations, and virus deaths, but is not tracking enough people who were ill with COVID-19, but never in the hospital. Not admitted to, she says.

She says, “They are being told that they stay home with Tylenol and Gatorade without medical supervision and only seek medical help if they can’t really breathe and need to be admitted to the emergency room.” She says. “I mean, this is the first time in any of our collective experiences that you will get sick, do so dramatically, and be told not to go to the doctor.”

As she has seen from Survivor Corps Group and from her own experience, the “public health crisis” induced by coronaviruses continues to have far-reaching effects on the body and mind, she says.

To learn more about these effects, Survivor Corps conducted a second “deep dive” report with Indiana University using regroup data to tell a harmonized story about coronovirus effects. Members are advocating for COVID-19 aftercare in hospitals across America

Barent is now a patient Mount Sinai Center for Post-COVID Care, which provides medical attention and support specifically for coronavirus survivors. She says that it should be repeated everywhere.

First and foremost, Mt. She points out that the suffering of survivors from Sinai’s coronovirus recovery facility is taken seriously.

“Many of our members are complaining that they [are] They are being gasified by their doctors. He is leaving with serious medical conditions and is said to be having an anxiety attack. “Yes, they are probably worrying, but they are also having tachycardia and need to be treated medically and taken seriously.”

She says it was an “unprecedented relief” for Barent to have a doctor sit with her and actually listen to every aspect of her post-coronovirus conditions.

Cores are also conducting plasma donation, because a coronovirus Survivor contains antibodies in the blood. While the decision is still out on how effective their antibody-abound plasma is as COVID-19 treatment, it is important for medical professionals to use it.

“Our mission has really been from the day I started Survivor Corps when I was in isolation with COVID in my bedroom,” she says, “and she is one of the survivors of COVID To donate his plasma to the military and support science. In every way possible. “

For Barent, ancillary science means that survivors, if they are able, must try to give back in some way.

“This virus is a mystery, but the answers to that mystery lie in the bodies of the survivors,” she says. “It is an ethical imperative that we engage in every scientific research study for which we are qualified.”

Finally, the core lets those who are experiencing chronic post-coronavirus symptoms or leave a place to connect after experiencing the virus. And while most of them are long-lived, membership has not diminished in size since forming the group in March.

She says that living at home or experiencing the effects of coronovirus can lead to isolation and loneliness, with community needs stronger than ever.

“I would say, on a positive note, that Survivor Corps is actually an extraordinary virtual space,” she says. “It is the most civic, supportive, caring community that exists among 100,000 strangers in the US right now.”

Berent has said one thing to those who think that coronavirus is a hoax: just stop by the Survivor Corps website for evidence.

“People ask me all the time, what should I tell, you know, my uncle who thinks it’s a hoax?” She says. “And the answer is very simple: come on Survivor Corps and read these stories – and I promise that he will change his mind.”

Are you a COVID-19 ruler for a long time? Let us know in the comments below.


Karyn Miller-Medzon produced and edited this interview for broadcast with Todd Mundt. Serena McMahon adapted it for the web.