When I got COVID in March, I was stunned because as a healthy 45-year-old, I rarely thought I would be one of the first New Yorkers to suffer from respiratory illness, which I have only seen in the elderly and bad. Was thought to be influential in a way. immunocompromised. Everything went wrong about that notion.
You do not need to tell us that we are all susceptible to viruses. As New Yorkers we wept as we lost loved ones during March and April as the virus thundered through our city; We all have read the habits and know the horror stories of losing parents and losing children.
And I found out that the virus brings more rocky fluctuations than the case of the flu. I had experienced the beginning of the morning, but it would start fine, but would later turn into terrible, breathing and soul-crushing headaches.
But when I recovered I came out of my bedroom, where I had spent 18 days in isolation, in the warm rugs of my family, feeling that I had ended up with the virus. Eventually, I finally tested negative for the virus and positive for the antibody. I just assumed, like the flu, it was over.
My stomach kept bothering me, but I was determined to lose weight (words I never imagined) and the strength that made me unable to exercise. Once known to exclude the bride and groom at their wedding, I could barely wake up at 9 o’clock
It has been six months; I still cannot stay till 9 o’clock at night and I cannot practice my routine once. The shadow of my acute symptoms has returned like waves in recent months. Severe nausea, deep internal ear pain and headaches come and go; Every morning I feel like I’m arriving in a shopping bag to pick up the symptoms of the day.
The nausea was so incredible, at one point, I went to urgent care for a prescription for anything that would take it away (I had never experienced nausea during pregnancy and a candle for it Was not kept); I submitted so characteristically that despite my pleas, they insisted on giving me the COVID test.
Knowing that it would be negative (yes, there have been some recombinations, but they are very few and what are the chances in the meantime?) I also requested an antibody test. As expected, the diagnostic test was negative and despite persistent symptoms, my antibodies remained high.
That blurred vision is disturbing; I was a professional photographer until I got COVID and I was always proud of my vision. I recently went for a complete eye exam with all clear marks before COVID. One of the extremely lucky people, who was able to visit the Post-Covid Care Center of Mount Sinai, I went to an ophthalmologist last week who diagnosed me with glaucoma.
I will say that I am devastated but it has not sunk yet. I also met a GI specialist who diagnosed me after COVID IBS (which I mean, they had no idea what was wrong) and a doctor who ordered my head MRI.
The medical community is stunned, but they have to start taking “long COVID” seriously and acting. We, as patients, will guide them. If we are going to guinea pigs with a novel virus, then help us pave the way towards recovery.
One of the other misconceptions we had in the beginning was that it was a respiratory virus. Now that we know that it has more connection with the vascular system, we are beginning to understand why it is destroying every organ system.
I started a grassroots COVID movement called Survivor Corps which now has over 100,000 members. When I spend time on those pages I realize that I am among the lucky ones; Many people who had average “Gatorade and Tylenol” versions of COVID like me No Are you ok. The CDC estimates that one in three patients do not recover quickly and we have already skyrocketed six million infections nationally. You do not have to be an epidemiologist to do the math and see that we have a public health crisis behind which we are actively fighting.
In the Survivor Corps we are members of their 20s who were marathon runners and have five months of fever every single day and cannot fly up stairs. We already have healthy men (but mostly women) who are leading the lives of the elderly. Every movement causes pain; Every doctor’s appointment results in a new diagnosis. Excessive neurological symptoms are leaving people with brain fog unable to find their words. And it is safe to say that every person will say that their mental health has deteriorated.
COVID steals these people from their prime years. We need medical research to help COVID survivors move forward at a faster pace. Instead of gaslighting them with a diagnosis of anxiety (really, who isn’t worried these days?) Long-term sufferers take it seriously. Post-covid care centers need to be established at the national level. And please know that this is not just a case of the flu or ended up on a vent. There is a very big bucket in the middle, where I am, where you don’t want to be.