Often overnight, healthy children can develop confidentiality symptoms, which can be done. abolish abilities. When children are finally diagnosed, often after weeks of exams and office and hospital visits, parents may want to learn that they have a variety of sclerosis – a non- tolerant to obstruct one of the adults.
"For many years, the tagline for MS is that the" Young Adult Adults "," Theodore P. Cross, said " a researcher in social work at the University of Illinois. Cross is also a co-author of a recent study of children's families with MS parent, published in the home Iris of Children and Young People's TraumaSouth Westerly
"Many of these children were through a certificated reward where they were going from payers to emergency rooms to other payers, and could even give weeks even if they got The proof was MS, "said Cross. "At the same time, the physical activity is off. They suffer from tiredness. They can affect their vision and their mental processes. They do not think why and there is no proof any explanation. "
The parents in the study were recruited from the MS parent centers in the Boston Children's Hospital, where authorized authorizations Lisa V. Duffy, and the Massachusetts General Hospital, where psychoanalysts David J. Rintell and Alane K. Shanks performing practices with the Parent Center Partners MS Center.
According to Rintell, "The MS patiatric form was not confirmed until just over ten years ago. It was not known."
OnlineRintell, who has done a broad survey of families where an MS parent says that there is a lot of information about family experiences when a child develops their disease.
At this time, there are a few types of MS in 400,000 people in the USA, a disease in which white blood cells are damaging the floods of strangers in the & # 39; backbone and brain, often cause brain problems. But there are only 3-10 percent of those patients in MS on a parent, which occurs in younger people under 18.
According to Duffy, a nurse practitioner confirmed in MS nursing, children often appear with very different symptoms than adults, such as visual changes and memory and lack of attention, make complexity judgments.
"Sometimes we would see patients where their main indication was that they were beginning to fail classes or their symptoms were falling sharply, and that someone was built that way, "said Duffy. "The protection of the disease is different in young people. It is more quiet, and they have more MS when they've been discovered."
Several parents said among the 21 couples interviewed for the study that they did not see the symptoms of their child as a result of poor illness, often eliminating them as a result of sleeping in the wrong place or The child was uncertain or unhappy because they were tired, tired or slept more.
In order to reduce families "long and challenging short-term" often; On the other hand, education initiatives are needed for all types of healthcare providers to help them identify the paths of MS pediatrics, written by the researchers.
Treating the child's illness and treatment was very challenging, difficult and difficult for the children, said Cross.
"Since meeting these children and adolescents and their families, it was very clear that the parents were struggling," said Rintell. "They were very worried and they were worried about their children, as expected."
Many parents were expressed by managing or sending them. Seeing their child to get calm enough once or twice a day with a welcome or brush left, Look at their children who experience the effects of medication and the emotional, mental and physical problems associated with the illness.
Some parents were arrested by managing a number of diagnostic procedures, a doctor and a hospital visit, and from working with a number of healthcare providers. They researched the monitoring of the amount of information, paperwork and curation costs, researchers.
Some of the families sought financial or emotional support from the National Diversity Sclerosis Society, who funded the report on which the study was based, and received social assistance from other parents of children with the illness. According to the researchers, patients of patients may need long-term emotional support, including mental health services and resources from advocacy agencies.
Researchers suggested that health care providers plan carefully the child's judgment and his / her; make sure that they answer family questions and so they are feel fitted to make medical results.
"Despite stress on their criticism and the demands for remedies, those families were benefiting from medicines that were changing diseases, and their part The majority of students have successfully changed the demands of the school, "said Cross. "With support from their peers in a community of families with MS parent, and with the help of the National Multiple Sclerosis Society, these families showed that they were strong in dealing with practical issues. stay with the illness. "