A 5-year-old lady was handled to a “wedding” picture shoot along with her preschool finest good friend simply weeks earlier than she is about to have coronary heart surgical procedure.
Sophia Chiappalone has already had three open-heart surgical procedures as a result of a collection of coronary heart defects she’s had since delivery. When it just lately grew to become obvious that she must endure one other operation, her mom, Kristy Somerset-Chiappalone, requested Sophia what she want to do earlier than the day arrived. Instead of occurring a buying spree or shopping for a brand new toy, Sophia merely wished two issues: to be a princess and to marry her finest good friend, Hunter Laferriere.
“That’s all she wanted in the world,” Somerset-Chiappalone, 36, of Meriden, Connecticut, instructed NBC Connecticut, “to marry the love of her life.”
Sophia is at the moment experiencing lung failure, and the following operation has been scheduled within the coming weeks at Boston Children’s Hospital. Sophia has no connection between her coronary heart and pulmonary arteries—which carry blood to the lungs. She primarily is lacking the precise aspect of her coronary heart, her mom says, and Sophia underwent her first open coronary heart surgical procedure simply days after delivery. She will want continued operations for the remainder of her life.
“She’s a walking miracle,” Somerset-Chiappalone mentioned. “There is no life expectancy at this time because there’s no reason for her to be alive.”
When Somerset-Chiappalone approached Hunter’s mom, Tracy Laferriere, with the thought for a wedding-themed picture shoot starring their youngsters, she was rapidly able to make it occur.
“Immediately I started crying,” Laferriere, 34, instructed ABC News. “If it’s in my power to give that to her, how could I not?”
Laferriere referred to as up her photographer good friend, Marisa Balletti-Lavoie of Sbady Mouth Photography, to arrange a shoot for October 23 at a park in Meriden.
“Just seeing Sophia’s smile, he didn’t complain once,” Hunter’s mom mentioned of Hunter in the course of the picture shoot. “He was genuinely having a fun time. They were laughing together, tickling, swinging and on the slides. I think he really enjoyed it. I think it makes him happy to see her happy.”
The hour-long mock marriage ceremony shoot happened in City Park, and the 2 finest badociates have been surrounded by yellowing bushes kissed by fall.
“I was trying so hard to be strong,” Somerset-Chiappalone instructed ABC News of the shoot. “I’m trying to be strong for Sophia. In reality, she’s slipping into heart failure more and more, and this might be the only time I ever see her in a wedding dress. That was going through my head.”
A GoFundMe web page is on the market to badist out her with Sophia’s previous and future medical bills. Somerset-Chiappalone—who additionally has two different ladies—takes care of Sophia full time, based on WESH 2 News. Doctors say she could have DiGeorge syndrome, a major immunodeficiency illness that will increase a affected person’s susceptibility to infections. It may end up in irregular gland improvement and coronary heart defects, based on the American Academy of Allergy, Asthma & Immunology.
“I wish that she keeps her fighting spirit,” Somerset-Chiappalone mentioned. “And I hope she never loses her quality of life … no matter what the end result is.”